Narissa’s World

I’m learning to do what I can when I can, and that warehouse shopping rocks.  Who says I don’t have room for the stuff, I just need someone cute to bring it inside.  :P  Then I have food in a pinch or other stuff.

Ok, no one likes hearing that their illness could be caused by their own stress.  They go through biofeedback training, therapy, they are intelligent people, and yet one day it dawns on them, yes stress plays a significant role if not a causative role in their disease:

The condition is called trigeminal neuralgia because the painful facial areas are those served by one or more of the three branches of your trigeminal nerve. This large nerve originates deep inside your brain and carries sensation from your face to your brain. The pain of trigeminal neuralgia is due to a disturbance in the function of the trigeminal nerve. Trigeminal neuralgia is also known as tic douloureux.

The cause of the pain usually is due to contact between a normal artery or vein and the trigeminal nerve at the base of your brain. This places pressure on the nerve as it enters your brain and causes the nerve to misfire. Physical nerve damage or stress may be the initial trigger for trigeminal neuralgia.

Ok, so we have to function in today’s stressful world, right?  We don’t usually qualify for disability, right?  What if the doctors got an idea that just might work.  A living community for chronically ill patients.  There could be transportation provided to work when you are unable to drive but able to work.  Patients that lived alone would be in one section with someone to check on them once a day (in a way they can communicate, if talking is difficult, then obviously talking wouldn’t be the first choice), patients with children in another section that provided childcare at a moments notice (where a responsible adult that you recognized would pick up you children and take them to a safe caring place until family or yourself could take over), and most of all, it would be quiet and dark.  Meals would be provided to those who need them, meeting their dietary needs.  Shoppers would be provided to those who need them as well.  The hours missed from work and spent on healthcare SHOULD decrease, making such a place affordable.  There could be group outings with cancellations at the last minute totally understood, so that you aren’t totally isolated.  These are just the basic ideas I have off of the top of my head.  There are probably more.  Not assisted living, but actually a lifeline to the millions of chronically ill patients out there struggling to survive.

Can you tell I’m frustrated right now?  Let me know your ideas?

When does it begin and why?  Life would be so boring if we were all the same.  Why can’t people see that and embrace the differences instead of fighting them and the people who are different?  Don’t they see the hurt and pain they cause?  Or do they care?  Are they so insecure that they have to beat up others to feel decent about themselves?

And yes, my Friday sucked.

Sometimes life throws you a curve, and you have to swing with all of your might.

There’s no looking back at the ump, no arguing strikes and balls, you play with what you get.

It’s like you’re a rookie all over again, having to prove yourself.

If you’re lucky, your coach believes in you and gives you a second chance.

And you land on your feet.

And your friends and your family are there to cheer you on.

Sometimes.

I’m baaaack!  With a lot of help from my friends.  :)  Thank you guys.  :)   *hugs*

It’s been a long time, so let’s catch up.

Hmmmm….I’m sorta in remission and have a fulltime job for next year. My husband could not handle my condition, so we are in the midst of a divorce (don’t feel sorry, it’s freeing actually…I guess you can feel bad for him, he’s having a tough time with it). Summer actually comes to a close this week as classes begin next week to get ready for the new school system, THAT is making the timing of everything very stressful…I just need to let it all go and enjoy I guess. It will work itself out somehow. Easier said than done.

Trying to find a dentist to clean your teeth when you have trigeminal neuralgia is like, well, pulling teeth.

I went to see the allergist/immunologist by myself and it was fine. A few glitches, but overall fine. It was nice to wiggle my toes in the sand again. It was nice to find out what is up with this cough. It was nice to prove I could do it on my own.

To my friends and family who have given me support and space to fly, thank you. I love you more than you will ever know.

My Friend Rantz Tagged me:

My modified meme:

“Reach for nearest book,
Turn to page 23
Find the second sentence and
Post the next three sentences.”

Cadence by B.J. Hoff

Things were right for them right now, and Renny meant to do whatever he could ro ease Vangie’s worries and the needs of the children.  If only she could read…  Her mind raced as she hauled the chair along behind her, heading down Mulberry Street.

Check out the video below:

http://illnessministry.ning.com/video/video/show?id=847406%3AVideo%3A5

When I was pondering this subject, I came across this great blog A Chronic Dose . She found a source that said that 75% of marriages where one or more partners have a chronic illness end in divorce. I remember the day I wrote those words for my marriage ceremony and was totally serious about them. I even endured the “jokes” about how my husband should have taken out an extended warranty on me. I faithfully took care of him after his stroke, even if it meant stopping at a friends house on the way home from work to vent, pray or cry.

So what happened? I’m not sure. He went to the neurologist with me and asked NO questions about trigeminal neuralgia. He admittedly read little about it. In my mind it seems as though he used it as an excuse to take away my freedoms and show what a great husband he was by taking care of me; all of the while thinking this was the worst time of his life and me feeling like a prisoner in my own home and car. My neuro put his foot down the other day and gave me my car back…it was glorious, and I’m not giving it back. And after the conversation about this being the worst time of his life and refusing any type of therapy, well, I am scared, but I think I’m ready to be part of the 75%. I’m happy for my parents and other people who made it work, but it’s just not working here. In fact, I’m thrilled my parents are still together, cause I’m going to need them more than they know (or maybe they do).

And yes I do remember every detail of that conversation that day. It’s seared into my memory forever.

“You’re free”…that’s what my husband said to me this week.  While that sentence has interesting undertones, in simple terms, I can drive my own car whereever I want, whenever I want, whereever I want, YIPEE!!!!!  This has been TOO LONG coming!  Also, I got an exemplary on my evaluation, and managed to teach 2 1/3 classes yesterday (full-time is 3)…I had arrived at 6:45, so I almost got an entire planning period in as well (would have if I had drive alone).  Hmmm wonder  if they’ve ever had a teacher work 6:30 until 1:30 before?  If they were willing to do that, I could work full-time I think.     Interesting idea since they need more Geometry teachers.  We’ll see how Monday goes (math tournament.